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On Living - Right Where I Am


posted by Once A Mother on , , , , , , , ,

17 comments

"As long as I can I will look at this world for both of us. As long as I can I will laugh with the birds, I will sing with the flowers, I will pray to the stars, for both of us." ~Sascha


It's been just over a thousand days since Peyton left this world. 
Just over a thousand days since I held her in my arms that last time as the sun broke through the clouds, and cast white light across her small body. 
It's been just over a thousand days... 
God I miss her.


I spent the better part of the first year without Peyton being furious. 
At God mostly. 
It hit me tonight, as I looked at my two beautiful blessings, that it may be time to start working on toning down that fury
It may be time to start feeling Thankful rather than Spiteful when I think of Him.
It may be time, but that is a post for another day.


In that first year after Peyton's death I saw very little hope in the future and no joy in the day to day. Even to think about feeling joy felt like some sort of betrayal, and yet when people tried to remind me that living was not a betrayal, I hated them for it. 


People would see me spending all day every day at her grave that first year, and they would say, "Peyton wouldn't want to see you like this" and I would think, "what the hell do you know anyway? Was your child born unexpectedly with cancer? Did your child die in your arms? Do you live with the aching arms? And the nightmares? And the daytime ones?"


I was hurting. 
Everything was darkness. 
Telling me that I was disappointing Peyton in my grieving just added to my fury. 
To my fury, and to my guilt.


In that first year people told me I would survive.
They were right.
I did.
Every second of every minute was agony, but somehow, some way, I came through it, even if only by the skin of my teeth.


The second year without Peyton I lived on Pause. 
Every day was Groundhog's day. 
The sun rose.
My child was dead. 
The sun set. 
My child was dead. 
Families around us grew.
My child was dead.
Children conceived after Peyton died had now outlived her, and yet, my child was still dead.


It is still hard for me to believe, sometimes, that I no longer live in that long gray fog that consumed the second year. At that time the world around me seemed to be moving at lightning speed, while our world, our tiny little corner of the universe, sat immobile - seemingly stuck on its axis unable to turn towards the sun.


And then, just like that, one day it did.


One day there was forward momentum, a feeling that had become so foreign a concept to me that I didn't know what to do with it.


In that moment we were afforded a new lease on life, and the blessing that this is has not been lost on me. 


Peyton's third birthday is just a few mere months away, and I feel something shifting in me once again. For the first time, in a very long time, maybe ever, I find myself thinking of Peyton and smiling. 
Not all the time of course, many memories of her still stir feelings of being robbed, scared, and heartbroken, but every once in a while an image of that little girl - so tiny, so brave - pops into my mind and I can see her lifting her sweet, perfectly round little head up off of my chest when we did skin to skin, and the corners of my lips turn upward in gratitude.


Yes, you read that right. Gratitude.


Peyton did something no one else in this world can ever undo. 
She made me a mother, and through the aching, I can't help but to feel grateful for that. 


She came into this broken world, loved me with a pure heart, and left so many gifts for me that I am still discovering them day by day.


Some have been easy to see - the friendships I have made within the BLM community. The connection I have been able to feel with my writing. The deep sense of empathy I feel for those who are hurting - and others have taken more time to fully grasp - like realizing how important it is to truly appreciate each and every day.


Even the tough days, because a tough day is just another chance to overcome something difficult, and discover something beautiful in its wake. 


That little girl has enriched my world. 
She has made colors crisper.
Experiences richer.
Meanings deeper.


Because of Peyton I appreciate what a gift it is to wake up each morning.
Because of Peyton I can feel the wind on my cheek and know that somewhere, somehow, in some way that I am too human to understand, we are sharing that moment.
Because of Peyton I truly, TRULY, know how lucky I am to be a mother.
I know what a gift it is to be exhausted from a sleepless night with the babies.
I know not to take for granted any moments with my children, even the challenging ones like those that I have faced in breastfeeding the twins.


That's not to say I don't ever moan or groan or feel sorry for myself about this or that, because I do, I am human, but usually, a beat or two behind whatever gripe I may be airing, I stop, think of that little girl and all that she has taught me, and that quickly puts things back into perspective.


Maybe everyone goes through this? 
Maybe this, this feeling that I owe it to Peyton to live the life she wasn't afforded, is just another stage of grieving.
I don't know.


What I do know is that she can't laugh, so I feel that I owe it to her to fill my life with laughter
She can't have a family of her own, so I owe it to her to love mine with all of my heart.
She can't chase her dreams, so I owe it to her to never stop believing in mine.


As the poet Sascha says, I owe it to Peyton to do all these things "for the both of us."


I miss my daughter.
Nothing will ever, nothing can ever, change that.


I still have days where the tears come calling, but something inside of me is shifting.


I am coming to see that honoring Peyton is not equivalent to spending all of my life longing only for what I can never have.


I am coming to see that it honors her memory more to embrace and rejoice in all that I do.


****
This post is part of the StillLife With Circle's Right Where I Am Project. I'm about a month late to the party, but hey, better late than never.
****

On Living - Right Where I Am


posted by Once A Mother on , , , , , , , ,

18 comments

"As long as I can I will look at this world for both of us. As long as I can I will laugh with the birds, I will sing with the flowers, I will pray to the stars, for both of us." ~Sascha


It's been just over a thousand days since Peyton left this world. 
Just over a thousand days since I held her in my arms that last time as the sun broke through the clouds, and cast white light across her small body. 
It's been just over a thousand days... 
God I miss her.


I spent the better part of the first year without Peyton being furious. 
At God mostly. 
It hit me tonight, as I looked at my two beautiful blessings, that it may be time to start working on toning down that fury
It may be time to start feeling Thankful rather than Spiteful when I think of Him.
It may be time, but that is a post for another day.


In that first year after Peyton's death I saw very little hope in the future and no joy in the day to day. Even to think about feeling joy felt like some sort of betrayal, and yet when people tried to remind me that living was not a betrayal, I hated them for it. 


People would see me spending all day every day at her grave that first year, and they would say, "Peyton wouldn't want to see you like this" and I would think, "what the hell do you know anyway? Was your child born unexpectedly with cancer? Did your child die in your arms? Do you live with the aching arms? And the nightmares? And the daytime ones?"


I was hurting. 
Everything was darkness. 
Telling me that I was disappointing Peyton in my grieving just added to my fury. 
To my fury, and to my guilt.


In that first year people told me I would survive.
They were right.
I did.
Every second of every minute was agony, but somehow, some way, I came through it, even if only by the skin of my teeth.


The second year without Peyton I lived on Pause. 
Every day was Groundhog's day. 
The sun rose.
My child was dead. 
The sun set. 
My child was dead. 
Families around us grew.
My child was dead.
Children conceived after Peyton died had now outlived her, and yet, my child was still dead.


It is still hard for me to believe, sometimes, that I no longer live in that long gray fog that consumed the second year. At that time the world around me seemed to be moving at lightning speed, while our world, our tiny little corner of the universe, sat immobile - seemingly stuck on its axis unable to turn towards the sun.


And then, just like that, one day it did.


One day there was forward momentum, a feeling that had become so foreign a concept to me that I didn't know what to do with it.


In that moment we were afforded a new lease on life, and the blessing that this is has not been lost on me. 


Peyton's third birthday is just a few mere months away, and I feel something shifting in me once again. For the first time, in a very long time, maybe ever, I find myself thinking of Peyton and smiling. 
Not all the time of course, many memories of her still stir feelings of being robbed, scared, and heartbroken, but every once in a while an image of that little girl - so tiny, so brave - pops into my mind and I can see her lifting her sweet, perfectly round little head up off of my chest when we did skin to skin, and the corners of my lips turn upward in gratitude.


Yes, you read that right. Gratitude.


Peyton did something no one else in this world can ever undo. 
She made me a mother, and through the aching, I can't help but to feel grateful for that. 


She came into this broken world, loved me with a pure heart, and left so many gifts for me that I am still discovering them day by day.


Some have been easy to see - the friendships I have made within the BLM community. The connection I have been able to feel with my writing. The deep sense of empathy I feel for those who are hurting - and others have taken more time to fully grasp - like realizing how important it is to truly appreciate each and every day.


Even the tough days, because a tough day is just another chance to overcome something difficult, and discover something beautiful in its wake. 


That little girl has enriched my world. 
She has made colors crisper.
Experiences richer.
Meanings deeper.


Because of Peyton I appreciate what a gift it is to wake up each morning.
Because of Peyton I can feel the wind on my cheek and know that somewhere, somehow, in some way that I am too human to understand, we are sharing that moment.
Because of Peyton I truly, TRULY, know how lucky I am to be a mother.
I know what a gift it is to be exhausted from a sleepless night with the babies.
I know not to take for granted any moments with my children, even the challenging ones like those that I have faced in breastfeeding the twins.


That's not to say I don't ever moan or groan or feel sorry for myself about this or that, because I do, I am human, but usually, a beat or two behind whatever gripe I may be airing, I stop, think of that little girl and all that she has taught me, and that quickly puts things back into perspective.


Maybe everyone goes through this? 
Maybe this, this feeling that I owe it to Peyton to live the life she wasn't afforded, is just another stage of grieving.
I don't know.


What I do know is that she can't laugh, so I feel that I owe it to her to fill my life with laughter
She can't have a family of her own, so I owe it to her to love mine with all of my heart.
She can't chase her dreams, so I owe it to her to never stop believing in mine.


As the poet Sascha says, I owe it to Peyton to do all these things "for the both of us."


I miss my daughter.
Nothing will ever, nothing can ever, change that.


I still have days where the tears come calling, but something inside of me is shifting.


I am coming to see that honoring Peyton is not equivalent to spending all of my life longing only for what I can never have.


I am coming to see that it honors her memory more to embrace and rejoice in all that I do.


****
This post is part of the StillLife With Circle's Right Where I Am Project. I'm about a month late to the party, but hey, better late than never.
****

Tending To Our Wounds


posted by Once A Mother on , , , , ,

74 comments

"Don't you think it's unhealthy to talk about it all the time?"
"Don't you worry about what people will think if they read your blog?"
"Is writing about it really what you should be doing now? It's been over a year..."

When I was in college, my five roommates and I worked at a certain world famous theme park. One day I came home complaining about a man who I had called security on for having exposed himself. Nutty park patrons were something we all dealt with daily, and my story kicked off a sort of round table of griping about the weirdos that colored our days. I thought my story was the strangest, that was until one of my roommates, a hostess at a park restaurant blurted out, "you think you deal with weirdos, girl you don't know weird until you have dealt with the 'towel baby'. "

'Towel baby' was just that - a towel, dressed with sunglasses and a hat to resemble a baby. The park patrons who brought 'towel baby' were regulars at the parks, such regulars in fact that my roommate had been instructed during her training that she (and all the other employees) were to follow along with the couple's delusion.

When waiting on their table, staff were to comment on how cute 'towel baby' was, take food orders for 'towel baby', and treat 'towel baby' as they would any other child at the park. As they ate, the couple would sneak bits of food away from the table, to give the illusion that the child had eaten it himself. My roommate told me that she had heard that the couple had lost their child, and under the pressure of grief, the wife snapped one day and began treating the towel as it were her child. Not wanting to upset his wife's already delicate mental state, the husband went along with the front.

Many who heard the story of 'towel baby' would write her off as a wacko and laugh. I even came across a forum once devoted to making fun of this woman. In the years since I heard the story, I have often wondered how it was that someone could be driven to such a place mentally.

Nine years, and one dead child later, I have a little bit better idea.

I was telling the story of 'towel baby' over our IBMD lunch, when one of the mothers I was lunching with told me about a woman who lived on her street when she was a kid. She said the woman had lost her child, and would spend her days walking up and down the block, pushing a stroller with a doll in it. She believed the doll was her child. Neighborhood kids would taunt the woman, even going so far as to throw the doll into the river. "She believed it was her baby," this mother told me. "Can you imagine how traumatic that was for her to see what she thought was her baby being thrown into the river?"

The story was heartbreaking.

Images of bereaved mothers are often portrayed in movies and on television as women who have simply snapped. On the show One Tree Hill, a nanny went crazy and tried to replace her dead child, with the boy who was under her care. The villain in the movie The Hand That Rocks The Cradle went insane after, among other things, miscarrying a child.

Do you see a theme here?

Urban legends, literature, movies, the media, each offer depiction after depiction of women who have not only lost their children, but their minds, and honestly, having lived this nightmare of loss, the assumption that losing a child can send a woman over the edge doesn't feel all that far fetched.

There are no words to describe what it is to go on living after your child has died. No words to describe what that does to a person, or how it feels. For me, compound that loss with infertility, and the list of descriptors grows longer by the day.

Gut wrenching.
Suffocating.
Unyielding.
Desperate.

These are a few I would use, but even they don't do it justice.

My grandmother lost two babies back before women could talk about losing a baby. I thank God that she went on to have more children (one of which was my mother who went on to have me) but I don't really know how she did it. Especially not back then. Back then, some women would put on brave faces. Others became shut ins. Many, unfortunately, were unable to fall in line with society's expectations and grew too hopeless to go on living. Whenever I hear comments made to other BLM's about moving on, I think of these women, and I cringe. Is that what pushed them over the edge? One too many people passing judgement on their grief?

What society doesn't understand is that grief is not a phase, or a choice. Anyone who believes that the grieving have any choice in the matter are either incredibly lucky for having never faced anything so painful in their own life, or incredibly foolish. As a bereaved parent, you can choose to put your best face on, you can choose to put your best foot forward, and still end up drowning in your own tears because of the many varied day to day reminders of what you had with your child, what was lost with your child, and what never will be for your child. It is a long and nasty process, and if there were any choice in the matter, the bereaved would take it. We want to be free of our heartache but it just isn't that simple.

My child died.
It was horrific to watch.
There is no cure for that.

I started this blog nearly a year ago (5/17/09) with a poem I had written about Mother's Day. It was my first Mother's Day, a day I had envisioned during my pregnancy, and one that I was being forced to spend without her. That first Mother's Day was full of grief. My second was grief and anger at my lack of fertility. Sometimes I can't help but wonder how life can be so cruel.

This past year I have chronicled the occasional ups and many downs of surviving child loss while facing infertility. This blog has been my place, my catharsis. This has been my space to vent and be heard and understood and thank God for it, because it is only through being honest here, that I have maintained my sanity.

Some think that grieving openly is unhealthy but I beg to differ. It is suppressing our grief that is unhealthy.

Our grief is a wound, deep and in pain, and it has to be examined and cleaned and dressed for it to heal. Sometimes the same areas have to be cleaned two, and ten, and a hundred times, and if that is what it takes to heal, so be it. Not dealing with our grief would be like expecting a band-aid to heal a wound.

Placing a band-aid over a wound for the sake of not troubling others with the ugliness of what has happened is an invitation for infection. Sure it might look better on the outside, but beneath that clean, shiny bandage it would be festering (sorry, gross analogy) and could cause irreparable damage.

Damage that might make a woman believe a doll, or a towel, is her child.

I have been thinking alot about the 'towel baby', and the doll in the stroller. I have been wondering what makes them different than me, than you, than any of us in this God awful baby loss world.

Just like us, these women were at one point considered normal. They had their whole lives ahead of them. Just like us, these women rubbed their bellies, and anticipated their child's birth. Just like us, in some way or another, they witnessed the end of their child's life.

I think that is where the similarity ends.

Unlike these women, we have sought out the help and validation of others who are walking this path with us or have walked it before us. Unlike these women, we know how healing self expression can be. Unlike these women, we understand that what we are going through and feeling may not be the societal norm, but is perfectly normal under these circumstances. Unlike these women, we are lucky.

Yes, you read that right. Lucky.

Lucky because we are still here.
Living.
Breathing.

We know that we could try masking our grief, or ignoring it, but that doing so wouldn't make it go away, it would only cause it to manifest in other ways.

We are lucky because we are tending to our grief, and as impossible as it may feel at times, we will be better for it.

It is only through tending to the wounds of our grief that they can heal, and we can survive - sanity and all.