Triggers, triggers everywhere.
Reminders of all you went through.
Reminders of all we went through.
Tonight it was a movie. I didn't know it was that kind of movie.
It knocked me through a loop.
Just know baby girl that I am missing you so much. And I am so sorry I couldn't save you. And that I wish I could make peace with all that needs to be made peace with, because I know you would want that for me, but I have not yet found a way.
I found this poem tonight. It made me think of this journey through life without you, though to be honest I feel my grief is more of a tidal wave than a river, stealing my bearings when it comes, but a river is a beautiful image nonetheless.
Missing you always.
xx
Momma
My grief is like a river,
I have to let it flow,
But I myself determine,
Just where the banks will go.
Some days the current takes me
In waves of guilt and pain
But there are always quiet pools
Where I can rest again.
I crash on rocks of anger
My faith seems faint indeed
But there are other swimmers
Who know just what I need.
And loving hands to hold me
When the waters are too swift
And someone kind to listen
When I just seem to drift
Grief's river is a process
Of relinquishing the past
By swimming in Hope's channels
I'll reach the shore at last
~Cynthia G. Kelley~
Archive for October 2010
posted by Once A Mother on Guilt, infant loss, manifestations of grief, To Peyton
posted by Once A Mother on Guilt, infant loss, manifestations of grief, To Peyton
Triggers, triggers everywhere.
Reminders of all you went through.
Reminders of all we went through.
Tonight it was a movie. I didn't know it was that kind of movie.
It knocked me through a loop.
Just know baby girl that I am missing you so much. And I am so sorry I couldn't save you. And that I wish I could make peace with all that needs to be made peace with, because I know you would want that for me, but I have not yet found a way.
I found this poem tonight. It made me think of this journey through life without you, though to be honest I feel my grief is more of a tidal wave than a river, stealing my bearings when it comes, but a river is a beautiful image nonetheless.
Missing you always.
xx
Momma
My grief is like a river,
I have to let it flow,
But I myself determine,
Just where the banks will go.
Some days the current takes me
In waves of guilt and pain
But there are always quiet pools
Where I can rest again.
I crash on rocks of anger
My faith seems faint indeed
But there are other swimmers
Who know just what I need.
And loving hands to hold me
When the waters are too swift
And someone kind to listen
When I just seem to drift
Grief's river is a process
Of relinquishing the past
By swimming in Hope's channels
I'll reach the shore at last
~Cynthia G. Kelley~
posted by Once A Mother on the snowflakes
posted by Once A Mother on the snowflakes
posted by Once A Mother on Bedrest, Bereaved Parent, future children, God, Guilt, hope, Husband, Leukemia, manifestations of grief, messages and signs, overwhelmed and frustrated, pregnancy after loss, the snowflakes
Yesterday I woke up feeling a little overwhelmed. I am ashamed to admit it, because in comparison to the other hurdles of these past few years what's a little bed rest right? That being said, it's like all of my frustrations hit me at once.
I am approaching 7 weeks of bed rest. I thought last week marked 7 weeks, and then counted again to find that, no, I had somehow lost a week in there somewhere, and though the actual number of hours/days/weeks on bed rest shouldn't matter all that much, realizing I had miscounted felt like I had been duped.
I know that I have countless (up to 20 more) weeks of bed rest ahead of me, and that's okay, I am willing to do whatever it takes to get these snowflakes here and healthy, but for some reason yesterday, among all that conviction, I felt the sudden urge to get up and run away from all of this.
Well... to be fair I didn't really want to run away. What I really wanted to do was hop out of bed and clean my house.
Hubs has been working loooong hours this week (read 6:30AM to 11:30PM long with a few breaks in there to make me dinner etc.) and spent all last weekend doing construction on our house, so to say this place is a disaster area is quite the understatement. There are dishes in the sink that I want to go do. Floors I want to mop and vaccuum. A bored silly little black lab that I would love to take to run and romp and play in the leaves.
There are so many things I feel up to doing, but I can't.
I think if I felt more like crap, bed rest would be somehow easier to swallow, but barring some achey/crampy feelings, and the unrelenting morning sickness that I have somehow grown accustomed to, I don't feel unwell generally (although the last few days have hit me especially hard and I am wondering if I somehow a- picked up a stomach bug even though I don't go out anywhere, and b- am going to eventually get a bed sore because my rear and hips are really, really tender from all this laying around.)
Yesterday we got some really nice news, and though I can't go into it here, I was excited to talk about it with hubs when he got home. A few minutes before I expected him, the phone rang.
It was Viacord.
For those who don't know, Viacord is a cord blood banking service. This is how our conversation went.
"If you bank your child's cord blood," the rep was telling me on the phone, "and they need stem cells, they will always have a perfect match available to them."
"Yes," I said, "unless the child is born with leukemia in which their stem cells don't do them any good."
"Well," he continued, "babies aren't born with leukemia."
"My daughter was."
"Born with it?!"
"Yes."
"I've never heard of such a thing."
"Well I guess I am that lucky."
He proceeded to give me the rest of his spiel, and with every word that he spoke about cord blood and stem cells and leukemia, the reality of our situation sunk in deeper and deeper. We are not a "normal" expecting couple. We are a seemingly healthy couple who had a child born with leukemia and no one seems to be able to tell us why.
I hung up the phone and it all hit me - an onslaught of worries and fears about leukemia that I have somehow kept at bay these last 19 weeks with the exception of a few restless, mind racing nights. Up until now, I haven't allowed myself to go there. I have lived in this fantasy world of "that could never happen to us again," and then this call came in and I was forced to go "there", to that terrifying place, and I hated it.
When hubs came home he did not find his happy wife ready to talk about our good news, but instead a a petrified mess blurting out in tears that maybe I was a fool. That maybe God tried to send me a clear message by destroying my tubes and I was too cocky and too proud to listen. That maybe He was also making this pregnancy so difficult for a reason, and I was just too damn thick to understand.
Hubs listened patiently, in his normal agnostic-married-to-a-guilt-ridden-catholic sort of way of not understanding my relationship with/fear of God, yet totally respecting my right to my feelings, and then he told me he didn't think that was the case, and that it's okay to believe the snowflakes will come here healthy, and happy, and whole. He told me this in a way that felt somehow rehearsed, and showed me that beneath his tough exterior he was scared too, and when he left a few minutes later to start dinner, I felt like crap for having gone "there" with him, because I know he, too, tries so hard to push those fears from his mind.
So there I was - not feeling very well, sad, overwhelmed, frustrated by the belief that I can't be like the seemingly 99.99% of this world who say to themselves, "let's have babies," and nine happy months later are blessed with crying pooping wonderfully healthy little children, and then the anger rolled in, and the depression and anxiety, and I re-traced every step I have taken on this struggle paved road to motherhood and sunk deeper into my hole.
Basically I was having a pity party.
An out and out, true blue, feel sorry for myself and nothing and no one are going to get me out of it pity party, and that's when I saw it - a message posted by my amazing friend Lisette to her status.
It read:
"Don't let the sadness of your past and the fear of your future ruin the happiness of your present."
And as I read those words, something amazing happened - they started to feel true. So I read them again, aloud, over and over. I read them until they pushed away the clouds of self doubt, and fear, and anxiety, and though I had been shaken to my core by my frustrations of the day, and the conversation with Viacord, and these last two years- I allowed them to sink it.
Yes I lost my child to leukemia and no one knows why.
Yes I am scared.
Yes I don't know what the future brings.
But right here, right now, I am pregnant, and these snowflakes are growing and doing well, and that is a blessing not to be overlooked.
Yes it is okay for me to allow myself to feel hopeful once again.
posted by Once A Mother on Bedrest, Bereaved Parent, future children, God, Guilt, hope, Husband, Leukemia, manifestations of grief, messages and signs, overwhelmed and frustrated, pregnancy after loss, the snowflakes
Yesterday I woke up feeling a little overwhelmed. I am ashamed to admit it, because in comparison to the other hurdles of these past few years what's a little bed rest right? That being said, it's like all of my frustrations hit me at once.
I am approaching 7 weeks of bed rest. I thought last week marked 7 weeks, and then counted again to find that, no, I had somehow lost a week in there somewhere, and though the actual number of hours/days/weeks on bed rest shouldn't matter all that much, realizing I had miscounted felt like I had been duped.
I know that I have countless (up to 20 more) weeks of bed rest ahead of me, and that's okay, I am willing to do whatever it takes to get these snowflakes here and healthy, but for some reason yesterday, among all that conviction, I felt the sudden urge to get up and run away from all of this.
Well... to be fair I didn't really want to run away. What I really wanted to do was hop out of bed and clean my house.
Hubs has been working loooong hours this week (read 6:30AM to 11:30PM long with a few breaks in there to make me dinner etc.) and spent all last weekend doing construction on our house, so to say this place is a disaster area is quite the understatement. There are dishes in the sink that I want to go do. Floors I want to mop and vaccuum. A bored silly little black lab that I would love to take to run and romp and play in the leaves.
There are so many things I feel up to doing, but I can't.
I think if I felt more like crap, bed rest would be somehow easier to swallow, but barring some achey/crampy feelings, and the unrelenting morning sickness that I have somehow grown accustomed to, I don't feel unwell generally (although the last few days have hit me especially hard and I am wondering if I somehow a- picked up a stomach bug even though I don't go out anywhere, and b- am going to eventually get a bed sore because my rear and hips are really, really tender from all this laying around.)
Yesterday we got some really nice news, and though I can't go into it here, I was excited to talk about it with hubs when he got home. A few minutes before I expected him, the phone rang.
It was Viacord.
For those who don't know, Viacord is a cord blood banking service. This is how our conversation went.
"If you bank your child's cord blood," the rep was telling me on the phone, "and they need stem cells, they will always have a perfect match available to them."
"Yes," I said, "unless the child is born with leukemia in which their stem cells don't do them any good."
"Well," he continued, "babies aren't born with leukemia."
"My daughter was."
"Born with it?!"
"Yes."
"I've never heard of such a thing."
"Well I guess I am that lucky."
He proceeded to give me the rest of his spiel, and with every word that he spoke about cord blood and stem cells and leukemia, the reality of our situation sunk in deeper and deeper. We are not a "normal" expecting couple. We are a seemingly healthy couple who had a child born with leukemia and no one seems to be able to tell us why.
I hung up the phone and it all hit me - an onslaught of worries and fears about leukemia that I have somehow kept at bay these last 19 weeks with the exception of a few restless, mind racing nights. Up until now, I haven't allowed myself to go there. I have lived in this fantasy world of "that could never happen to us again," and then this call came in and I was forced to go "there", to that terrifying place, and I hated it.
When hubs came home he did not find his happy wife ready to talk about our good news, but instead a a petrified mess blurting out in tears that maybe I was a fool. That maybe God tried to send me a clear message by destroying my tubes and I was too cocky and too proud to listen. That maybe He was also making this pregnancy so difficult for a reason, and I was just too damn thick to understand.
Hubs listened patiently, in his normal agnostic-married-to-a-guilt-ridden-catholic sort of way of not understanding my relationship with/fear of God, yet totally respecting my right to my feelings, and then he told me he didn't think that was the case, and that it's okay to believe the snowflakes will come here healthy, and happy, and whole. He told me this in a way that felt somehow rehearsed, and showed me that beneath his tough exterior he was scared too, and when he left a few minutes later to start dinner, I felt like crap for having gone "there" with him, because I know he, too, tries so hard to push those fears from his mind.
So there I was - not feeling very well, sad, overwhelmed, frustrated by the belief that I can't be like the seemingly 99.99% of this world who say to themselves, "let's have babies," and nine happy months later are blessed with crying pooping wonderfully healthy little children, and then the anger rolled in, and the depression and anxiety, and I re-traced every step I have taken on this struggle paved road to motherhood and sunk deeper into my hole.
Basically I was having a pity party.
An out and out, true blue, feel sorry for myself and nothing and no one are going to get me out of it pity party, and that's when I saw it - a message posted by my amazing friend Lisette to her status.
It read:
"Don't let the sadness of your past and the fear of your future ruin the happiness of your present."
And as I read those words, something amazing happened - they started to feel true. So I read them again, aloud, over and over. I read them until they pushed away the clouds of self doubt, and fear, and anxiety, and though I had been shaken to my core by my frustrations of the day, and the conversation with Viacord, and these last two years- I allowed them to sink it.
Yes I lost my child to leukemia and no one knows why.
Yes I am scared.
Yes I don't know what the future brings.
But right here, right now, I am pregnant, and these snowflakes are growing and doing well, and that is a blessing not to be overlooked.
Yes it is okay for me to allow myself to feel hopeful once again.
posted by Once A Mother on Father's Day child loss, future children, hope, infertility after losing your baby is utter shit, IVF, my tubes are shot, OHSS, questions, SCH
Last Spring, I stumbled upon a video about infertility entitled "What IF?"
At the time when I first saw it, we were knee deep in grief over Peyton and had been trying desperately for nearly 9 months, without success, to achieve another pregnancy. The previous December, I had gotten the news that an infection from my c-section had left both of my tubes scarred beyond any usefulness, and that my only option, and not a guaranteed option at that, was IVF.
I was in shock.
For over a year after Peyton's birth I had complained to my doctor that I wasn't ovulating or menstruating. When she gave us the green light to try again last June, and I failed to conceive, I knew something was wrong. Through it all, my OB explained my infertility away as the result of me "grieving too hard." "If you don't get over this," she would tell me, "you will never get pregnant."
Lying alone and half naked on a steel table at the hospital, my unresponsive tubes glaring down at me from a monitor overhead, a sympathetic doctor delivered to me the news that I would never again be able to conceive on my own. "There is no justice in this world," she told me, taking a deep breath, and as she did, any last shred of hope that I had held onto for a family of my own, flowed out of my eyes and down my cheeks.
In that moment: grief stricken and infertile - I felt my life was over.
Discovering that I had lost my fertility after losing my only child undid several months of healing, and brought a million questions to my mind. Hard questions. Painful questions.
Was I still a woman if I couldn't conceive?
Was I still a mother if my only child was dead?
Was I still a Catholic if I was willing to pursue IVF when the church is so strongly against it?
Was I still a wife if I couldn't give my husband a family?
Were we still a couple if making love could never create a life?
For someone who just a year and a half prior had been a confident 28 year old, with a promising career, thriving social life, happy marriage, and first child on the way - the downward spiral of those 18 months took me to the darkest depths of my life. Everything I believed would be suddenly felt like a lie, and the truths that I was facing were hard to swallow:
I had lost our child.
I had lost our fertility.
I had lost our hopes.
That's not a typo. I HAD LOST these things, or at least that's how I felt. In my mind, the blame for all of our losses and failures, were mine and mine alone.
I don't know why I always viewed hubs in a different light than myself. In many ways, I saw him as a victim in all this. He had married me and I had failed to hold up my end of the bargain.
Maybe it was because our IF issues were with my body?
Maybe it was because when he proposed he told me he wanted to "grow old together and have lots and lots of children," and the realization I couldn't give him that made me pity him for staying with me?
Maybe it was because I was Peyton's mother, and our miscarried baby's mother, and mothers always blame themselves.
All I know is that when I stumbled across this video, it struck a deep chord with me. I had, for months, been asking myself many of the same questions posed in the video.
What IF I lost my sense of self to my infertility?
What IF I lost my sexiness to infertility?
What IF I lost my spouse to infertility?
What IF?
What IF?
What IF?
Today I was looking around on the internet, and once again came across this video. As I did, the tears came, but they were different somehow. Today I cried tears of gratitude. Though I had felt so sure just six months ago that infertility would beat me, today I realized that I have beaten infertility.
It took over a year of trying, months of hormone injections, the pain of twisting an ovary, Ovarian Hyper Stimulation Syndrome, 4 weeks of bed rest for the Ovarian Hyper Stimulation Syndrome, the heartbreak of learning our first cycle had failed, many, many, MANY hours of therapy to deal with the above mentioned feelings, facing a second cycle after failing the first with no explanation, a bleed that has kept me on bed rest since week 12 and in all likelihood will continue to keep me bed ridden for the next 20 or so weeks, tens of thousands of dollars, countless tears, fears and anxieties, and all the emotions that go into having a high risk pregnancy after loss, but I am here - pregnant - full of hope - and very grateful.
I guess that is why I am writing this post. To let others on their own infertility journey know that I get it. I have been there, at the bottom, the very bottom. I have questioned every aspect of myself, my worth, and my life. I have wondered if joy would ever again return to my heart. If I could ever give my husband a family. If I could ever survive this, and the answer is yes.
There is always a chance.
Sometimes we have to wrestle with these big questions to find our way, but in the end, we can all get there. For us, a couple who lost their fertility to birthing a dying child, our chance came with IVF. For others it comes with surrogacy, or IUI. Medications, or adoption.
I don't know what the future holds for us, but I do know that it is looking brighter once again, and that is something that once felt impossible.
I guess that what I am trying to say is that it is only when we open our eyes and our minds to all of the possibilities in front of us, even those that we fear or resent or are unsure of, that we can find pathways to hope.
Here is the video that had such an impact on me. I am sure for those of you haven't seen it before, or are viewing it a second time, you will feel it resonates at some level with you too. (Be sure to pause the music player in the right column of this blog to hear the video.)
posted by Once A Mother on Father's Day child loss, future children, hope, infertility after losing your baby is utter shit, IVF, my tubes are shot, OHSS, questions, SCH
Last Spring, I stumbled upon a video about infertility entitled "What IF?"
At the time when I first saw it, we were knee deep in grief over Peyton and had been trying desperately for nearly 9 months, without success, to achieve another pregnancy. The previous December, I had gotten the news that an infection from my c-section had left both of my tubes scarred beyond any usefulness, and that my only option, and not a guaranteed option at that, was IVF.
I was in shock.
For over a year after Peyton's birth I had complained to my doctor that I wasn't ovulating or menstruating. When she gave us the green light to try again last June, and I failed to conceive, I knew something was wrong. Through it all, my OB explained my infertility away as the result of me "grieving too hard." "If you don't get over this," she would tell me, "you will never get pregnant."
Lying alone and half naked on a steel table at the hospital, my unresponsive tubes glaring down at me from a monitor overhead, a sympathetic doctor delivered to me the news that I would never again be able to conceive on my own. "There is no justice in this world," she told me, taking a deep breath, and as she did, any last shred of hope that I had held onto for a family of my own, flowed out of my eyes and down my cheeks.
In that moment: grief stricken and infertile - I felt my life was over.
Discovering that I had lost my fertility after losing my only child undid several months of healing, and brought a million questions to my mind. Hard questions. Painful questions.
Was I still a woman if I couldn't conceive?
Was I still a mother if my only child was dead?
Was I still a Catholic if I was willing to pursue IVF when the church is so strongly against it?
Was I still a wife if I couldn't give my husband a family?
Were we still a couple if making love could never create a life?
For someone who just a year and a half prior had been a confident 28 year old, with a promising career, thriving social life, happy marriage, and first child on the way - the downward spiral of those 18 months took me to the darkest depths of my life. Everything I believed would be suddenly felt like a lie, and the truths that I was facing were hard to swallow:
I had lost our child.
I had lost our fertility.
I had lost our hopes.
That's not a typo. I HAD LOST these things, or at least that's how I felt. In my mind, the blame for all of our losses and failures, were mine and mine alone.
I don't know why I always viewed hubs in a different light than myself. In many ways, I saw him as a victim in all this. He had married me and I had failed to hold up my end of the bargain.
Maybe it was because our IF issues were with my body?
Maybe it was because when he proposed he told me he wanted to "grow old together and have lots and lots of children," and the realization I couldn't give him that made me pity him for staying with me?
Maybe it was because I was Peyton's mother, and our miscarried baby's mother, and mothers always blame themselves.
All I know is that when I stumbled across this video, it struck a deep chord with me. I had, for months, been asking myself many of the same questions posed in the video.
What IF I lost my sense of self to my infertility?
What IF I lost my sexiness to infertility?
What IF I lost my spouse to infertility?
What IF?
What IF?
What IF?
Today I was looking around on the internet, and once again came across this video. As I did, the tears came, but they were different somehow. Today I cried tears of gratitude. Though I had felt so sure just six months ago that infertility would beat me, today I realized that I have beaten infertility.
It took over a year of trying, months of hormone injections, the pain of twisting an ovary, Ovarian Hyper Stimulation Syndrome, 4 weeks of bed rest for the Ovarian Hyper Stimulation Syndrome, the heartbreak of learning our first cycle had failed, many, many, MANY hours of therapy to deal with the above mentioned feelings, facing a second cycle after failing the first with no explanation, a bleed that has kept me on bed rest since week 12 and in all likelihood will continue to keep me bed ridden for the next 20 or so weeks, tens of thousands of dollars, countless tears, fears and anxieties, and all the emotions that go into having a high risk pregnancy after loss, but I am here - pregnant - full of hope - and very grateful.
I guess that is why I am writing this post. To let others on their own infertility journey know that I get it. I have been there, at the bottom, the very bottom. I have questioned every aspect of myself, my worth, and my life. I have wondered if joy would ever again return to my heart. If I could ever give my husband a family. If I could ever survive this, and the answer is yes.
There is always a chance.
Sometimes we have to wrestle with these big questions to find our way, but in the end, we can all get there. For us, a couple who lost their fertility to birthing a dying child, our chance came with IVF. For others it comes with surrogacy, or IUI. Medications, or adoption.
I don't know what the future holds for us, but I do know that it is looking brighter once again, and that is something that once felt impossible.
I guess that what I am trying to say is that it is only when we open our eyes and our minds to all of the possibilities in front of us, even those that we fear or resent or are unsure of, that we can find pathways to hope.
Here is the video that had such an impact on me. I am sure for those of you haven't seen it before, or are viewing it a second time, you will feel it resonates at some level with you too. (Be sure to pause the music player in the right column of this blog to hear the video.)
posted by Once A Mother on a good day after many many shitty days, Bedrest, future children, hope, IVF, secondary infertility, the snowflakes
posted by Once A Mother on a good day after many many shitty days, Bedrest, future children, hope, IVF, secondary infertility, the snowflakes
posted by Once A Mother on a good day after many many shitty days, Bedrest, Bereaved Parent, cemetery, Child Loss, friendship, kindness, manifestations of grief, SCH, the snowflakes
I guess there is a reason I have let those messages go unopened for the better part of two years.
posted by Once A Mother on a good day after many many shitty days, Bedrest, Bereaved Parent, cemetery, Child Loss, friendship, kindness, manifestations of grief, SCH, the snowflakes
I guess there is a reason I have let those messages go unopened for the better part of two years.






